Our Board of Directors is composed of volunteers who have a personal stake in gaining awareness of this disease; Complex Regional Pain Syndrome. They are either patients or have a loved one who is. Many of the members of the Board also deal with chronic pain/disability issues themselves so they thoroughly understand the issues faced by patients and their loved ones.
While we are large in goals we remain small in cost. We have very little overhead. A lot of the computer work is done in the home of the webmaster Chris and/or in the homes of volunteers and Board members across the USA, such is the beauty of the computer world. We can have volunteers all across the country doing projects for us and it doesn't take up any space in the office! Remember, we are an all-volunteer workforce! None of the dollars you donate go towards salaries or building rent.
We don't hold any fancy Board meetings or get-togethers, preferring instead to go to a local restaurant or typically holding the meetings at one of our homes, again, to ensure every dollar possible goes towards raising awareness of CRPS.
I think part of that stems from the fact that so many of us on the Board deal with Chronic pain every day,so many of us can relate to those who contact us. While I, Keith, am the only one with CRPS/RSDS, there are two of us with Fibromyalgia, one with MS, Degenerative disc disease, arthritis, etc.
We are not medical professionals here at American RSDHope. Please talk with your Doctor before starting or stopping any medications, procedures, treatment, therapy, etc.