CRPS & HBOT - Keith Orsini of American RSDHope Shares His Journey
PAIN IS A FOUR LETTER WORD - Keith Orsini's CRPS Blog
This blog covers the experiences of a nearly Four Decade long survivor of CRPS (Complex Regional Pain Syndrome), Keith Orsini of American RSDHope. Keith first got CRPS in 1974. He is also one of the Directors and Founders of American RSDHope, a national non-profit organization for CRPS information.
Keith started the blog in 2008 when he was undergoing Hyperbaric Oxygen Therapy (HBOT) as a way of sharing what the experience was like. He blogged almost every day, explaining what it was like to experience Hyperbaric Oxygen Therapy firsthand; everything from what had to be done before he was approved for the treatment, the different types of chambers used, how long his dives were each day, what it felt like to "dive" (the actual treatment itself), how he felt after each dive, etc. There were some days he was too tired to blog but he kept it up pretty faithfully.
He blogged about most of the 30+ dives he experienced as well as how he felt in the weeks and months following the treatment. It is a very interesting read if you are considering the treatment.
Since those first blog entries, Keith has added other information regarding the disease CRPS itself. Unfortunately many of the posts from the June, 2010 to June, 2011 time period have been lost in the transition (move from the old website to the new website). Sorry for the gap. But there are many, many other posts there to read before that time and since then up to and including now. He still blogs now as much as he can.
There are questions and answers covered in the blog on many aspects of CRPS; medications, treatments, blocks, what CRPS feels like, how it impacts families, and much more. You can scroll through the titles and just pick out and read the ones that interest you.
READ KEITH ORSINI'S HBOT JOURNEY HERE
Be sure to scroll to the very bottom of the page to read the first entry in the blog, "The Journey Begins!"