Below is a listing of CRPS/RSD support groups across the United States sorted by State then city. We try to keep our list as up-to-date as possible but if you still do not see a group in your area try the RSDSA. Any information highlighted in RED, when “clicked” will link directly to an email or website. If there is only a phone number listed, that is that Support Groups preferred means of contact and they will welcome your call. ARIZONA – Tucson, AZ – RSD Care & Share Support Group of Tucson; call (520) 744-5930 or email Sheila Reynolds
CALIFORNIA – San Francisco Bay Area (Foster City) All Fired Up! CRPS/RSD Support Group; For more information contact Elisa Friedlander or phone (650) 756-8330
CALIFORNIA – Los Angeles, CA – USC Chronic Pain Support Circle; contact Robin Kohn, RN for details -YOU MUST RSVP FOR MEETINGSCALIFORNIA – Templeton, CA, 93465 – RSD Support Group; call (805) 704-5970 or email Suzanne Miller
CALIFORNIA – Valencia, CA, 91355 – Autoimmune Support Group; open to 13 yrs of age and up (parents permission required), call 661-666-1004 or email William Wells
CONNECTICUT – The RSDSA – PO Box 502 Millford, CT 06460 – RSDSA ; call (203) 877-3790 or email Info
This is one of the two National CRPS/RSD Organizations (American RSDHope Organization being the other).
GEORGIA – Atlanta, GA – Please email Melissa Wardlaw or call her at 770-565-9060
HAWAII – Ohau, HI – Oahu CRPS Support Group, for monthly meeting information, please contact Jennifer Picciotto via email
ILLINOIS – Elk Grove Village, IL 60007 – IL RSDS and Chronic Pain Assoc.; call (630) 665-0717 or email Edwina SchaefferILLINOIS – Chicago (Southwest), IL 60453 – For more information call (773) 895-2053 or email Mary TilleryINDIANA – Fort Wayne, IN – Adams County Chronic Pain Support Group ; call (800) 728-2425 or email Mara Gerke
KENTUCKY – Deane, Kentucky 41812 – Deane CRPS Support Group; Call (859)-954-0985 or email Desta Sloane
MICHIGAN- Ann Arbor and Detroit areas – Michigan RSD/CRPS Warriors; for information about meeting dates and times, email Suzanne Stewart. Great advocate for CRPS patients. She has worked not only for CRPS patients in her group but for patients all over the country through her awareness efforts and with American RSDHope.
MISSOURI – St. Peters, MO – St. Louis, O’Fallon, St. Charles, and the Greater Missouri Region; Missouri RSD/CRPS Support; email Dan Kaatman or call 314-504-6354-cell for more information.
NEW HAMPSHIRE – NASHUA, NH 03060 – Support Group for Teens with Chronic Pain – Meets 1st & 3rd Thursdays each month at the Nashua Library 20 Court St, Nashua, NH. The group is facilitated by an MSW and an adult that experiences chronic pain. For more information please contact Kristen McGraw at (603)-965-6838 or email her at Kristen
NEW JERSEY – Mt. Laurel, NJ 08054 – RSD & CP Support Group Of Southern NJ; call (609)-877-0213 or email Lisa Vasey
NEW JERSEY – Patterson, NJ 07440 – RSD & You Support Group of Northern NJ; call 973-694-7084 or 201-704-0963 or email Jaclyn Drake
NEW YORK – Bohemia, NY – CRPS Support Group; for details, email or phone Irene Dixon, (516) 318-1325
NEW YORK – Eggertsville, NY – RSD & CRPS Support Group Western NY; email or call Lynda Ostrowski 716-480-7424 or Mike Karnyski 716-631-0193 for details
NEW YORK – Greenvale, NY (Long Island) – Chronic Pain Support Group; (516) 629-2410 Lynn Grimaldi, RN for meeting information -this group requires pre-registration and the first meeting is Nov. 20th; Elizabeth Seickel, RN can help with other questionsNEW YORK – Astoria, NY – Queens CRPS Support Group; email Laura Belt
NEW YORK – Ronkonkoma, NY 11779 – Living With RSD; call (631) 563-4856 or email Debra Huberman
NEW YORK – Vestal, NY – Binghamton RSD Group; call (607) 655-2167 or email Corky Mott
OHIO – North Royalton, OH, Ohio Fire and Ice Angels, for more information call (440) 476-1359 or email Lynda Avallone
OHIO – Westerville, OH, (Columbus) Central Ohio RSD/CRPS Advocates, for more information call (614) 571-0989 or email Susan Blackwood
OKLAHOMA – Mustang, OK; Oklahoma RSD/CRPS Support Group for information please contact Tracy Jones, (405) 226-7837
PENNSYLVANIA – Souderton, PA – Montgomery County RSD & Chronic Pain Support Network; call (267) 888-7559 or email Stephanie
SOUTH CAROLINA – Sumter, SC – Sumter RSD Group; Call Donna Parker (803) 481-7521
TEXAS – Arlington, TX 76015, North Texas CRPS/RSDS Support Group; for information contact Randy Jarvis via call or text (817) 721-7335
WASHINGTON – Tacoma, 98466 and Silverdale 98383, CRPS South Sound Support Group; for more information email Rochelle Carlson
or call (253) 820-7438 ADDITIONAL INFORMATION REGARDING SUPPORT GROUPS CAN BE FOUND HERE
